11.7 Bibliographie

Arbeitsgruppe Kinder & Jugendliche der Deutschen Gesellschaft für Palliativmedizin (2011). Versorgungskonzept für eine bundesweite Umsetzung der SAPV für Kinder, Jugendliche und junge Erwachsene (SAPPV).

Académie Suisse des Sciences Médicales (2019). Directives et recommandations médico-éthiques – Soins palliatifs. Berne: ASSM.

Aschenbrenner, A. P., Winters, J. M., & Belknap, R. A. (2012). Integrative review: parent perspectives on care of their child at the end of life. Journal of Pediatric Nursing, 27(5), 514–522. doi:10.1016/j.pedn.2011.07.008

Bergsträsser, E. (2019). Jahresrückblick 2018 vom Palliative Care Team am Kinderspital. Jahresrückblick. Disponible sous: https://www.kispi.uzh.ch/de/patienten-und-angehoerige/fachbereiche/pall…
palliative%20care

Bergsträsser, E., Cignacco, E., & Luck, P. (2017). Health care Professionals' Experiences and Needs When Delivering End-of-Life Care to Children: A Qualitative Study. Palliative Care, 10, 1178224217724770. doi:10.1177/1178224217724770

Bildungszentrum für Gesundheit und Soziales (2019). Pädiatrische Palliative Care A2 und B1. Disponible sous: https://www.­bfgs-tg.ch/weiterbildung/palliative-care.html/6559

Bosch, A., Wager, J., Zernikow, B., Thalemann, R., Frenzel, H., Krude, H., & Reindl, T. (2018). Life-Limiting Conditions at a University Pediatric Tertiary Care Center: A Cross-Sectional Study. Journal of Palliative Medicine, 21(2), 169–176. doi:10.1089/jpm.2017.0020

Catlos, P. (2018, 24.10.). [CHOP-Kodes der Palliative Care. Eine komplexe Angelegenheit? Paper presented at the Informationsveranstaltung zu den Tarifen der spezialisierte Palliative Care im DRG-System: Welchen Wert hat die letzte Lebensphase?, Bern].

Craig, F., Abu-Saad Huijer, H., Benini, F., Kuttner, L., Wood, C., Feraris, P. C., & Zernikow, B. (2008). [IMPaCCT: standards of paediatric palliative care]. Schmerz, 22(4), 401–408. doi:10.1007/s00482-008-0690-4

Feudtner, C., Womer, J., Augustin, R., Remke, S., Wolfe, J., Friebert, S., & Weissman, D. (2013). Pediatric palliative care programs in children's hospitals: a cross-sectional national survey. Pediatrics, 132(6), 1063–1070. doi:10.1542/peds.2013-1286

Fraser, L. K., Miller, M., Hain, R., Norman, P., Aldridge, J., McKinney, P. A., & Parslow, R. C. (2012). Rising national prevalence of life-limiting conditions in children in England. Pediatrics, 129(4), e923–929. doi:10.1542/peds.2011-2846

Institut suisse pour la formation médicale postgraduée et continue (2016) Médecine palliative (palliative.ch). Disponible sous: https://www.siwf.ch/files/pdf18/palliativmedizin_version_internet_f.pdf

Jarvis, S., Parslow, R. C., Carragher, P., Beresford, B., & Fraser, L. K. (2017). How many children and young people with life-limiting conditions are clinically unstable? A national data linkage study. Archives of disease in childhood, 102(2), 131–138. doi:10.1136/archdischild-2016-310800

Jünger, S., & Radbruch, L. (2009). Ambulante Palliativversorgung von Kindern und Jugendlichen. Disponible sous: www.mags.nrw.ch

Melin-Johansson, C., Axelsson, I., Jonsson Grundberg, M., & Hallqvist, F. (2014). When a child dies: parents' experiences of palliative care-an integrative literature review. Journal of Pediatric Nursing, 29(6), 660–669. doi:10.1016/j.pedn.2014.06.009

OFSP (2019). Plateforme soins palliatifs. Disponible sous: https://www.plateforme-soinspalliatifs.ch/home

Stevenson, M., Achille, M., & Lugasi, T. (2013). Pediatric palliative care in Canada and the United States: a ­qualitative metasummary of the needs of patients and families. Journal of Palliative Medicine, 16(5), 566–577. doi:10.1089/jpm.2011.0076

Together for Short Lives (2018). A Guide to Children’s Palliative Care. Supporting babies, children and young people with life-limiting and life-threatening conditions and their families. Disponible sous: http://www.togetherforshortlives.org.uk/

Zimmermann, K. (2019). [Abfrage Ausbildungssituation Schweizer Kinderspitäler und Verband Kinder-Spitex Schweiz].

Zimmermann, K., Bergstraesser, E., Engberg, S., Ramelet, A. S., Marfurt-Russenberger, K., Von der Weid, N., . . . Consortium, Pelican. (2016). When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care. BMC Palliative Care, 15(1), 30. doi:10.1186/s12904-016-0098-3

Zimmermann, K., Cignacco, E., Engberg, S., Ramelet, A. S., von der Weid, N., Eskola, K., . . . Wernz, B. (2018). Patterns of paediatric end-of-life care: a chart review across different care settings in Switzerland. BMC pediatrics, 18(1), 67. doi:10.1186/s12887-018-1021-2